Rick Upp

Rick Upp

Chairperson, CDKL5 Alliance & Deputy President, IFCR It is my honor to serve as the Chair of the CDKL5 Alliance for the 2018-19 year. I come to the CDKL5 Alliance through the International Foundation for CDKL5 Research (IFCR). I’ve been active in the IFCR since soon after our daughter Olivia’s diagnosis in 2013. I have…