Lists all events

MAIN LESSONS FROM THE 2021 CDKL5 FORUM

MAIN LESSONS FROM THE 2021 CDKL5 FORUM For the past seven years, the Loulou Foundation has hosted an annual meeting, the CDKL5 Forum, where scientists and drug developers working on CDKL5 Deficiency Disorder (CDD), together with representatives from patient organizations, meet to discuss the latest advances in the field. You can find written summaries from…

CDKL5 International family conference

CDKL5 Alliance International Virtual Family Conference The CDKL5 Alliance is pleased to present this year’s International Virtual Family Conference on Saturday, June 19th, 2021. The conference will be ‘a la carte’, meaning you will be able to visit the cdkl5alliance.org website on the 19th or afterwards and view pre-recorded presentations from the speakers outlined in the agenda below.…

September 18-19, 2019: CDKL5 ASIA Workshop 2019

~For the advancement of understanding and Treating CDKL5 Deficiency Disorder~IRCN will hold two-day workshop which is organized in partnership with Loulou Foundation, and represents the first event on CDKL5 Deficiency Disorder (CDD) in Japan. Our overarching goal will be to reach out to CDD patient families and engage the scientific community in new partnerships and knowledge…

cdkl5 forum 2018

Fourth Annual Meeting CDKL5 Forum

On behalf of the Loulou Foundation and our partners from the Orphan Disease Center at the University of Pennsylvania and the CDKL5 Alliance, it gives us great pleasure to welcome you to the fourth annual meeting of the CDKL5 Forum for the advancement of science and therapeutic approaches. This year, the Forum returns to London…