List all Team member from 2018

carol-anne partridge

Carol-Anne Partridge

Secretary CDKL5 Alliance and Chair of CDKL5 UK Carol-Anne Partridge, is Mother to Amber who is living with CDKL5 deficiency and is our current Secretary of the CDKL5 Alliance. Carol-Anne is also co-founder of CDKL5 UK and former director of the International Foundation for CDKL5 Research. Aside from CDKL5 UK she represents the CDKL5 Associations…

Rick Upp

Rick Upp

Chairperson, CDKL5 Alliance & Deputy President, IFCR It is my honor to serve as the Chair of the CDKL5 Alliance for the 2018-19 year. I come to the CDKL5 Alliance through the International Foundation for CDKL5 Research (IFCR). I’ve been active in the IFCR since soon after our daughter Olivia’s diagnosis in 2013. I have…