CDKL5 Russia

About CDKL5 Russia

CDKL5 Russia Association has existed since 2019 under the auspices of the international CDKL5 Alliance. The Russian office of the Alliance is headed by the journalist, producer, prominent public figure and mother of a daughter with CDKL5 Maria Ivanova Surae. The Association participates in all the events dedicated to CDKL5 around the world. In Rome in 2017, Edinburgh in 2018, Boston in 2019, London in 2020. The Association works closely with the Nevromed medical centre (Moscow) and its director Anna Belkina.

Centre of Excellence

Nevromed (https://www.nevromed.ru) is one of the leading Russian medical centres specializing in child neurology. Nevromed has been working since June 1988. The director of Nevromed is Anna Belkina. Nevromed employs more than 60 highly skilled doctors, including neurologists, epileptologists, neurophysiologists, geneticists.

Anna Belkina belkina@nevromed.ru
Bol’shoy Ovchinnikovskiy Pereulok, 17/1, bld.3, Moscow, Russia

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Cdkl5russia@gmail.com

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